If you have a scleroderma diagnosis - you are not alone. In this collection of stories, real patients and carers share their experiences with scleroderma.
Monica's story
Listen to the courageous testimony of Monica, who fought with a severe anxiety to be now enjoying the time spent with her grandchildren.
Sabine’s story
Get familiar with Sabine's story, who was courageous enough to speak about caregiver's burnout and how seeking for help improved hers and Michael's life.
Rui’s story
Check how Rui speaks about supporting his resilient wife, Rute and how the positive attitude towards the disease brought them even closer together.
Michael's story
Listen how Michael's move to Mallorca and quality time spent with his wife and dogs is now considered by him as a new beginning.
Juan’s story
Listen to uplifting testimony of Juan - Monica's husband - who shares with her the ups and downs of living with scleroderma.
Grazia's story
Listen to a brave story of Grazia, who managed to maintain a normal life with a husband, two sons and active systemic sclerosis.
Eszter's story
Get familiar with the perspective of Eszter - sister of Anna, diagnosed with scleroderma - appreciate her enthusiasm, sense of humour and determination
Doris' story
Even if the diagnosis came to Doris unexpectedly, with support of her daughter she still remains active, working and loves to travel.
Alessandro’s story
Read and watch the story of a caregiver Alessandro, who supports on a daily basis his diagnosed with scleroderma mother.