Support
Sometimes, one of the hardest things to do is to ask for help. Whatever your situation, whatever you’re feeling, you don’t need to do it all alone.
3 min read
Practical and emotional help can come from anywhere—your friends and family, your doctor/nurse, your colleagues, or a local support group. People are usually happy to help.
One way to let people know how they can help you is to ask people to be on standby, to help you with daily tasks if you have a bad day.
Sometimes it can help to hear how others have managed with scleroderma. Their experiences and triumphs can help you find your own way forward.
Scleroderma transforms people's lives in different ways.
You may also like to read:
Specialist team
Your care will be managed by a number of different healthcare professionals. Learn about the doctors and nurses you might see.
Monitoring scleroderma
Symptoms of scleroderma may change over time. Learn how regular monitoring can help keep the disease in check.
Patient organisations and support groups
Many groups and institutions support and represent people with scleroderma. Get contact details for your local organisation.
"I've got a lot of support from my family and my church. My daughter and I try to do things together, because she knows I struggle with little basic things. Just getting dressed, she's happy to do it. She's just wonderful."
– Doris