Scleroderma Patient Talk Series
Scleroderma can impact many different parts of life. In this video series, a panel of experts – including those living with scleroderma – explore important topics associated with the disease.
2 min read
The topic of episode one is ‘The importance of early diagnosis’, where three scleroderma patients from different countries share their experiences and insights.
Episode 1: The importance of early diagnosis
5 stories · 23.20 mins
"It's important to tell the newly diagnosed who have never heard of scleroderma that they are not alone and it's important to give them hope, saying that together, we're more than just scleroderma." – Annelise
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What is scleroderma
Scleroderma affects people in different ways. Learn about this rare disease and its possible effects on the body.
Symptoms of scleroderma
There are many symptoms, but you won't necessarily get them all. Make sure you know what to look out for.
Diagnosis
The journey to diagnosis is different for everyone. Find out what your doctor needs to know to help you.
"Take somebody with you whenever you’re going to have a meeting with these specialists, because you’ll listen, but you won’t hear, and you certainly won’t take it all in."
– Mike