User Successfully Logged In
User Authenticated!
hero_emotional-wellbeing

 

Emotional wellbeing

Caring for someone with scleroderma is different for everyone. Although there is no right or wrong way to feel, here you can find ways that may help you cope.

2 min read

Your relationship dynamic with the person you care for may change. Whether they are your husband, wife, grandparent, child, friend or neighbour, what you can give and receive from one another may alter. It may not be easy at first, but be open and honest with each other.

facts-4-0-8in10

people say that caregiving strengthens their relationships.1

Caring for someone with scleroderma can also be stressful at times—and that’s understandable.1,2

  • Someone you love is experiencing pain, discomfort or distress.
  • Illnesses like scleroderma are often unpredictable.3 You will have to look out for any new symptoms or problems.
  • If you take on extra responsibilities, your day-to-day life may have to adapt. This will put strain on your personal relationships and finances.

However, there are practical ways that may help you to manage your own stress and wellbeing. These simple changes don’t take much time but may make a big difference to how you feel.

 story-alex-video

Reflection

Expressive writing and mindfulness have been shown to reduce stress and anxiety. See if you can fit these practices into your daily routine.
hero-diet-and-exercise

Diet and exercise

Caregivers often put their own health low on their list of priorities. But your health is more important than ever. Find out what you can be doing to keep your body healthy.
 

You may also like to read:

Discover more
hero-understanding-scleroderma

Understanding scleroderma

Find out what scleroderma is, the symptoms, the tests and what to expect if you are diagnosed with this condition.
Find out more
hero-specialist_team

Specialist team

Your care will be managed by a number of different healthcare professionals. Learn about the doctors and nurses you might see.
Learn more
 hero-i_have_scleroderma

Monitoring scleroderma

Symptoms of scleroderma may change over time. Learn how regular monitoring can help keep the disease in check.
 

  1. AP-NORC. Long-Term Care in America: Expectations and Reality. The Associated Press-NORC Center for Public Affairs Research, 2014.

  2. Schultz R and Sherwood P. Physical and mental health effects of family caregiving. Am J Nurs 2008 September;108(9 Suppl):23–7.

  3. Nakayama A, et al. Patients’ perspectives and experiences living with systemic sclerosis: A systematic review and thematic synthesis of qualitative studies. J Rheumatol 2016;43:1363–75.

quote-maria-3
_icon11-quotemarks-blue

"I see my daughter trying to deal with the problems that I have, and she finds the balance to help me and then to study. She's doing very well and I'm very proud of her."

– Maria