Sabine’s story
Sabine shares her emotional journey towards understanding and accepting her husband Michael’s diagnosis of scleroderma. She explains how seeking support for herself has strengthened how both she and Michael cope with this rare disease.
More stories
Alessandro’s story
Caring for a parent can be difficult at any age. Alessandro discusses his mother’s strength in the face of this rare disease.
Eszter’s story
Eszter doesn’t let scleroderma affect the way she sees her sister Anna, instead her enthusiasm inspires her.
Rui’s story
Rui believes that his wife’s diagnosis has made their relationship stronger and discusses the part he plays in keeping their lives positive.
Juan’s story
When Juan's wife, Monica, was first diagnosed with scleroderma, it consumed their lives. Juan explains how together they have found balance.
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Emotional wellbeing
First things first, you have to look after yourself. This is not selfish. You simply won't be able to help the person that you care for if you don't.
Caregiving
Providing care can be rewarding, but also challenging. Find out how to look after yourself and those you care for.
Caregiver support
There are many different types of help for people affected by scleroderma and their caregivers. Find a support network that works for you.