User Successfully Logged In
User Authenticated!

Alessandro’s story

Alessandro’s mother, Grazia, was diagnosed with scleroderma when he was 12. In this short film, he tells the inspirational story of his family’s experience with this rare disease. Alessandro proudly speaks of his mother’s acceptance of her condition and positive outlook which enables her to continue living life to its fullest.

story-alessandro-thumbnail

"I am very proud of her. The willpower that she has. The positive approach is the best approach."

– Alessandro

 story-alessandro-3rd-1
story-alessandro-3rd-2
story-alessandro-3rd-3

More stories

story-juan-thumbnail

Juan’s story

When Juan's wife, Monica, was first diagnosed with scleroderma, it consumed their lives. Juan explains how together they have found balance.

Juan’s story
story-eszter-thumbnail

Eszter’s story

Eszter doesn’t let scleroderma affect the way she sees her sister Anna, instead her enthusiasm inspires her.

Eszter’s story
story-sabine-thumbnail

Sabine’s story

When a loved one has scleroderma, your own wellbeing can feel less important. Sabine reveals the steps she takes to look after herself.

Sabine’s story
story-rui-thumbnail

Rui’s story

Rui believes that his wife’s diagnosis has made their relationship stronger and discusses the part he plays in keeping their lives positive.

Rui’s story

You may also like to read:

Find out more
hero-caregiving

Caregiving

Providing care can be rewarding, but also challenging. Find out how to look after yourself and those you care for.
Discover more
hero_emotional-wellbeing

Emotional wellbeing

First things first, you have to look after yourself. This is not selfish. You simply won't be able to help the person that you care for if you don't.
Discover more
hero-caregiver-support

Caregiver support

There are many different types of help for people affected by scleroderma and their caregivers. Find a support network that works for you.