Taking care of yourself
If you have pulmonary fibrosis, even small lifestyle changes can improve your overall sense of wellbeing
One of the most important steps to take is to speak to those close to you about how you feel. This could be about how you are feeling about the illness or other conditions, or just about how you feel in general.
Whenever you feel ready, these tips might help you start the conversation with those close to you:
This might be a face-to-face conversation, or you may find it easier to talk on the phone or write down how you feel in a letter
There may not be a 'good' time or place to tell your family and friends, but it can help if you can find somewhere quiet and comfortable, where you are unlikely to be disturbed
You could do this in your head or make some notes. Phrases such as "I've not been feeling like myself lately" or "I'm finding it hard to cope at the moment" might be a good starting point
If you've found a useful description in a booklet or on this website, you could use it to help explain what you're experiencing
It can sometimes feel uncomfortable sharing personal feelings, but explaining how they are affecting your life may help others to understand
You can also talk to your treatment team who can offer help and support to manage your wellbeing.
Don’t feel shy when asking your treatment team questions about managing your day-to-day life and overall sense of wellbeing. They may be able to suggest simple, practical tips you can undertake at home, or introduce you to support groups or professional counseling services in your area.
Please visit the community and support groups page for more guidance on where to find and participate in organisations dedicated to supporting people with pulmonary fibrosis.
There are many different things you can do to help improve your wellbeing. Below are some simple suggestions which could help you manage your condition and day-to-day life:
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Prioritise your daily activities, so that the most important tasks are completed first
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Plan ahead but try to keep your schedule as flexible as possible
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Pay attention to how your body feels when you are active (for example shortness of breath, tiredness or coughing). Adjust the intensity of the activity you are doing according to how you feel
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Take regular breaks, before you start to feel exhausted. Be sure to balance activities with regular periods of rest
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Ask others for help whenever you can. Friends, family members and acquaintances can help you with day-to-day tasks, such as running errands, arranging appointments and tidying the house
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Try to avoid thinking stressful thoughts like “I have to do this,” or “I really should do that”
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Try to eat as healthily as possible. Please visit the nutrition section for additional tips to help support a healthy diet
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Try light exercise such as taking a short walk or gardening when you can. You can discuss the different types of exercise and how much exercise you should do with your treatment team. Please visit the exercise section for more resources to help you develop an appropriate exercise plan
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Cigarettes and other tobacco products can cause significant damage to your lungs and make your breathing worse. If you are a smoker, quitting smoking and avoiding second-hand smoke can be beneficial for your breathing and overall health.2 Your treatment team can recommend programs to help you stop smoking. Speak with them first about the various options that could work for you
The UK National Heart, Lung and Blood Institute (UK), American Lung Association (USA) and World Health Organisation (global) all have useful advice on quitting smoking and other lifestyle changes.
These tips should help you and those close to you build a plan to prepare for the daily challenges you may face while living with pulmonary fibrosis.
Your mental wellbeing
Quitting smoking
Key takeaways
It is important to care for both your physical and mental health when living with pulmonary fibrosis
Talking to people about how you are feeling can help you deal with your emotions
Small lifestyle changes can help make your day-to-day life easier
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Liverpool Heart and Chest Hospital NHS Foundation Trust. Breathe: Get the most from life. Available at: https://www.lhch.nhs.uk/media/5197/breathe-booklet-final.pdf [Accessed March 2022].
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Wells AU, Hirani N, et al. Interstitial lung disease guideline. Thorax. 2008;63(Suppl 5): v1–v58.