Dealing with pulmonary fibrosis can take a heavy emotional toll. You may fear losing the ability to function without help and worry about having to rely on others.¹ It is important that you do not isolate yourself from family and friends, as this can lead to feelings of sadness, low mood and in some cases, depression.

Feeling low while living with pulmonary fibrosis

Most people with pulmonary fibrosis will experience a variety of emotions that can change gradually.¹ Sometimes people say that their sadness lessens with time. This doesn’t mean that you will stop worrying or feeling upset. But these feelings can become more manageable. You might be able to think about your situation a little more calmly and plan what you want to do.

Feeling low is not a sign of weakness. Many people diagnosed with a serious illness have similar feelings and experiences. Keeping open communication with family, friends and your treatment team is very important as they can help you to manage your mental wellbeing.

Be open about your pulmonary fibrosis with your loved ones

Being open about your pulmonary fibrosis can help both your physical and mental wellbeing. Sometimes, you may find it difficult to talk with your family and friends about pulmonary fibrosis. Most people have never heard of pulmonary fibrosis and are not aware what you are going through.

Through learning more about your condition, you will find it easier to explain it to others and get support to help you cope with any negative feelings you may have.

Change the way you explain pulmonary fibrosis depending on who you are talking to: a simpler explanation may be better for children or grandchildren than for adult friends and family.

An example of how to explain pulmonary fibrosis to young children:

For older family members and friends:

Staying active and maintaining hobbies²

Recognise that you will need to adjust your lifestyle and may need to rely more on those close to you. This does not mean that you must stop doing the things that make you happy. Try to stay active and remain positive. Having family and friends by your side and joining a patient support group can give you the support you need.

What you can do:

Patient support groups.³ Talking to other people who are going through a similar experience can help you in coping mentally with pulmonary fibrosis. In a patient support group, you will meet other people who are going through similar experiences to you. This gives you the opportunity to make new friends and share feelings about your daily lives. Patient support groups sometimes invite guest speakers, who will help to give you other viewpoints on your pulmonary fibrosis.

Please visit our community and support groups page for more information and resources that can help you find patient support groups in your area.

Eat well²

The types of food you eat can have a powerful impact on your mental wellbeing. Making sure you eat a well-balanced, healthy diet, full of fresh foods and lean protein can help you maintain a balanced mood and improve your wellbeing. At the same time, it’s important to allow yourself treats every now and then.

Visit our page on nutrition for more tips and resources that can help you create a healthy diet plan.

Relaxation techniques²

These can help you deal with the everyday stress of pulmonary fibrosis, by relaxing both your mind and body. Techniques can include meditation or mindfulness, where you calm your mind by being aware of your surroundings and at peace. Some people also find yoga useful.

Pulmonary rehabilitation - staying active and exercise^2,4

There are lots of ways to stay active (walking, yoga or gentle strengthening exercises), and exercise has been shown to help reduce anxiety, depression and improve overall quality of life.

Social activities and hobbies

Keeping up with friends and family and enjoying the things you love to do can have a positive impact on your mental wellbeing

Find out more

Community and support groups

Support groups connect people with pulmonary fibrosis together, to help share experiences about managing their condition.

Find out more

How do I know if I am depressed?

Depression is a clinical condition which is different to just feeling low every now and then. It is a common problem for patients with pulmonary fibrosis¹ and it is important to understand that being diagnosed with depression is not a sign of weakness.

A doctor will be responsible for diagnosing clinical depression. If you or your caregiver notice any of the following symptoms of depression, talk to your treatment team:

• Daily sadness

• Loss of interest in friends and hobbies

• Irritability and anger

• Sleep problems and lack of appetite

It is important to stay connected to friends, family, and take part in as much as possible in activities that you enjoy.

Speaking to a mental health professional

You should not have to suffer alone. As part of your treatment, you may need to speak to a professional counsellor.² He or she may suggest different options to help you cope with depression that best suit you, such as relaxation techniques, exercise or medication. A psychiatrist, psychologist, or support group can also help you cope if you have feelings of anxiety and depression.

Medications may be the right treatment option for your depression. Speak openly to your treatment team about any feelings you have to see if antidepressant treatments are right for you.

To learn some practical tips to help you manage your mental and physical wellbeing, visit the taking care of yourself page.

Key takeaways