2 min read
Patient talk series
Living with pulmonary fibrosis can be challenging, so it can really help to hear how others cope
Watch people living with pulmonary fibrosis, their loved ones, and healthcare professionals, discuss all aspects of the condition.
First, meet the panel of patients with IPF, their loved ones, a Specialist Respiratory Nurse and a lung specialist
Video length: 1.55 mins
Watch Dr Katherine Spinks, a lung specialist, talk about what it’s like to be diagnosed with pulmonary fibrosis, how common it is and what the symptoms are
Video length: 1.55 mins
Patients with pulmonary fibrosis talk about their journey to diagnosis and how they felt afterwards
Video length: 4.15 mins
“We do think positive most times, we have a wonderful family who gives its full support”
Two patients talk about their experiences of learning to deal with their diagnosis and how they try to maintain a positive outlook in their day-to-day life with pulmonary fibrosis
Video length: 2.47 mins
“My way to handle it was to find out as much as I possibly could about the illness”
See the role support groups can play in helping guide patients and loved ones through their journey of living with pulmonary fibrosis
Video length: 3.02 mins
Doris and Nicky talk about what it’s like having a husband with pulmonary fibrosis, and the emotional and practical impact the condition has on their day-to-day life
Video length: 1.43 mins
See what advice the panel have to offer on how to maintain a positive outlook and look after mental health and wellbeing when living with pulmonary fibrosis
Video length: 5.26 mins
”Once you have your diagnosis, make sure you become an active partner in your condition so find out everything you need to know and if you don’t know something, ask and ask the right people”
Also in this section
Wellbeing resources
Community and support groups
“It’s really important that people do look after the whole of themselves, not just their lungs but the physical and mental wellbeing that goes along with that”
