2 min read
Patient stories
Sometimes it can help to hear how others have learnt to live with pulmonary fibrosis. Watch the inspiring stories of people living with the disease, including their challenges and triumphs
For a newly diagnosed person with scleroderma
Have you recently been diagnosed with sclerodoma? We asked six people living with scleroderma to write a postcard with their advice to someone newly diagnosed with the condition. Here are the messages they shared.
Video length: 0.59 mins
The most important postcard you'll ever write
Patients diagnosed with scleroderma give thanks and share heart-warming messages of their positive experiences with their doctors.
Video length: 0.59 mins
Susan and Olivia's story
Susan recalls how her family, especially her daughter Olivia, helped bring back laughter into her life after diagnosis.
Video length: 3.05 mins
"At first I thought, how am I going to sleep at night? How am I going to get up in the morning?. . . But actually, I found a way."
Ron’s story
Ron tells us how playing golf and learning to slow down has helped him live with pulmonary fibrosis
Video length: 2.52 mins
"It just affects different people in different ways. Some people seem to live it all the time, but I don’t want to think about it all the time"
Jean's story
Jean explains how mindfulness really helps her to deal with her pulmonary fibrosis and maintain a positive outlook
Video length: 2.50 mins
“I pride myself on having lots and lots of resilience, acquired from my mum - and that sort of helps get me by”
Howard's story
Howard shares his positive experiences of pulmonary rehabilitation – as well as his love of being by the sea
Video length: 2.20 mins
“I don’t know what the future holds, but today is a beautiful day”
Terry's story
Terry tells us how his passion for both motor cars and life helps him through the bad days
Video length: 3.16 mins
“Quality of life is what it’s all about. And I think the more you have this mindset in place, the better life is”
Susan’s story
Susan recalls how her family, especially her daughter Olivia, helped bring back laughter into her life after diagnosis.
Video length: 3.57 mins
“At first I thought, how am I going ot sleep at night? How am i going to get up in the morning?...But actually, I found a way.”
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