2 min read
Pulmonary fibrosis postcards
Living with pulmonary fibrosis can be challenging, so it may help to hear from those with experience.
In the postcard video series below, you’ll hear patients and caregivers give short pieces of advice. They cover how to improve your experience if you have pulmonary fibrosis, and how to help if you are a caregiver.
In this series of postcard films, scleroderma (SSc-ILD) patient Alison, and her parents, share their message about the importance of maintaining a positive mindset when diagnosed and ways loved ones can help.
Video length: 34 secs
“I want to gift patients with a postcard with the message of maintaining a positive mindset”
Video length: 35 secs
“Accompany them when seeing a doctor and receiving treatment”
Video length: 34 secs
“Don’t give up easily”
Video length: 32 secs
“Try to accept it and live with it. You can find yourself being more brave and strong”
In these postcards, Cheryl, who has sarcoidosis, shares advice to patients and caregivers about the importance of writing a treatment plan with your medical team. Her sister, Vera, talks about how patience is also important when caring for loved ones.
Video length: 52 secs
“Remember, this is not the end, and you are not alone”
Video length: 58 secs
“Always be there for them”
Video length: 58 secs
“Be their eyes and ears…and be with them every step of the way”
In these video postcards, Sharon and Steve, who are both members of patient support groups, give their advice to people living with conditions associated with pulmonary fibrosis. They say that keeping busy and maintaining a positive attitude can help patients a lot.
Video length: 41 secs
“Everyone is different, and you can live a long time with this disease”
Video length: 27 secs
“Stay positive, keep fit and join a support group”
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