It’s important to remember that by working closely with your treatment team, and accepting support from loved ones, there are steps you can take to manage some of your symptoms and help you live life to the fullest.

Changes in your symptoms are an important indicator of the progression of your condition. You might find it helpful to keep a diary, tracking any changes you notice and how you feel over time. Remember to make a note of any questions or concerns you have. Going to your appointments with some questions prepared can help you get the most out of them. Knowing what is happening and why can help you feel more actively involved in your care. This can give you some peace of mind and help with practical decisions in the future.

Person with pulmonary fibrosis

“Join a support group, if somebody puts out a hand for help, somebody will always hold it”

At times, you may feel uncomfortable sharing things with your treatment team but try to remember that they have experience in this area and are best placed to offer advice and support