Caring for a loved one is often associated with a roller coaster of emotions, which can be both physically and mentally exhausting.¹ It is important to recognise these feelings - both positive and negative. Be reassured that it is normal to feel a range of emotions during this time.

While caring for someone, you may face many challenges, and have to consider things you haven’t thought about. It can help to have a plan in place for when your loved one is having a bad day.

If you notice your loved one feeling unwell or struggling with symptoms that affect them completing tasks, you can offer to help. It might be that they need practical support such as help with their food shopping, cleaning and cooking. It may help ease their mind knowing that the practical day-to-day chores are taken care of, allowing them to focus on living with their condition and doing the things they enjoy.

Your loved one living with pulmonary fibrosis may start to experience a low mood if they feel they’re losing their independence or worry about losing control.² It’s important to remind them that you’re there to offer support when they are having a bad day and that it’s just as important for them to allow you to support them.

Planning ahead for the bad days can help your personal day-to-day life and long-term wellbeing, giving you some peace of mind knowing that you’re prepared

Carer of someone with pulmonary fibrosis

“Keep smiling, keep positive and make the most of what you can do”