3 min read

Carer support groups

By going to a carer support group, the family and friends of people with pulmonary fibrosis can share their feelings, needs, and concerns about caring for their loved one

Older couple sharing a joke

Carer support groups can provide advice and help you with the mental and practical challenges of providing care to a loved one.1

What is a carer support group?

A carer support group is a meeting of people who are caring or have cared for a loved one with a serious condition. Sharing your caring experience with others who can understand what you are going through can help you to stay strong and committed to caring for your loved one.

Your loved one may also attend carer support groups which are tailored towards their own needs.

Depending on where you live, carer support groups may be organised by different people. For example, hospitals, charities and hospices may all arrange carer support groups.

What are the benefits of carer support groups?

Sometimes, people who are not carers can find the challenges of a being a carer difficult to understand. Getting together and sharing experiences with other carers who understand what you are going through can create a sense of community and help you to feel understood and supported.

There are many benefits of taking part in carer support groups, such as:1

  • Emotional support from others going through similar experiences

  • Practical support for all aspects of caring for somebody with a serious illness

  • Relief from loneliness

  • Learning about and gain coping strategies

  • Sharing knowledge and advice with others facing similar situations

key fact quick tip

QUICK TIP

Even though you provide care to a loved one you might not think of yourself as a carer. However, if you are providing care to someone who has pulmonary fibrosis, it is vital that you recognise your needs too

Where can I find carer support groups?

If you are looking for a carer support group, ask your loved one's treatment team about groups in your area. Carer support groups are often associated with hospitals and nursing homes; therefore, they should be able to steer you towards local services. In some countries, support groups may also be arranged by charities.

The most important thing to do is to talk to your loved one's treatment team about resources in your area.

Key takeaways

Bullet Point

Carer support groups help you share your feelings and get advice from others in similar situations

Bullet Point

Carer support groups help you develop coping strategies and provide some relief from feelings of isolation

Bullet Point

Speak to your loved one's treatment team who can advise you on groups in your area

  1. Mayo Clinic: Support groups: Make connections, get help. Available at: https://www.mayoclinic.org/healthy-lifestyle/stress-management/in-depth/support-groups/art-20044655 [Accessed March 2022]

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“Never cope alone as a carer there is always someone there to listen and understand how you feel”