2 min read
Caring for someone
Caring for someone with pulmonary fibrosis is challenging and can be both mentally and physically exhausting however, it can also be highly rewarding
Caring for a loved one is often associated with a roller coaster of emotions, which can be both physically and mentally exhausting.1 It is important to recognise these feelings - both positive and negative. Be reassured that it is normal to feel a range of emotions during this time.
“Never cope alone as a carer, there is always someone there to listen and understand how you feel”
While caring for someone with pulmonary fibrosis, you may face many challenges and have to consider things you haven’t thought about, such as:
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What support is available for you as you provide care from home
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Understanding the differences between supportive care and end-of-life care
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Legal and financial matters you have never had to deal with before
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What support is available to help you cope with the emotional challenges of being a caregiver
QUICK TIP
When caring for somebody with pulmonary fibrosis, looking after your own wellbeing is essential for looking after your loved one effectively
Olivia’s story
Having a loved one with pulmonary fibrosis has shown Olivia what kind of doctor she wants to be.
Video length: 1.17 mins
“It's mostly about compassion.”
Key takeaways
Caring for someone with pulmonary fibrosis can be both challenging and highly rewarding
You may face some challenges you might not have previously thought about when being a carer
Supportive care, end-of-life care and power of attorney are some other things to consider when caring for someone with pulmonary fibrosis
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Belkin A, Albright K, Swigris JJ, et al. A qualitative study of informal caregivers’ perspectives on the effects of idiopathic pulmonary fibrosis. BMJ Open Respir Res. 2014;1(1):e000007.
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Supportive care
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