5 min read
Journeys through pulmonary fibrosis podcast
Listen to stories shared by the community living with pulmonary fibrosis to inspire you
You're not alone
Some days are harder than others – particularly if you’re living with a chronic condition like pulmonary fibrosis. But as you’ll hear in the first episode of the inspiring ‘Journeys through Pulmonary Fibrosis’ podcast series; it helps to stay engaged, not give up and be an active participant in your own care.
Listening to these stories shared by the community living with pulmonary fibrosis will inspire you. Sincere, emotional, but ultimately uplifting, they follow the journeys of people who have experience of lung conditions and their effect on everyday life. We hear from people living with pulmonary fibrosis, carers and loved ones.
Subscribe here to the ‘Journeys through pulmonary fibrosis’ series so you never miss a new episode!
The importance of care partners in the patient journey
Season 2, episode 4 – The unsung heroes
For episode 4, we welcome a group of extraordinary people whose loved ones are affected by pulmonary fibrosis. Family and friends can often provide the most insightful or accurate accounts of how patients are really doing, during doctor’s appointments. Explore the important role these people play: from diagnosis to symptom monitoring.
The rollercoaster of emotions experienced when getting a diagnosis
Season 2, episode 3 – Finding the answer
In this segment, our team of patients with pulmonary fibrosis, carers and specialist doctors share their stories. Listen to them discuss the clarity that diagnosis can provide, and find out what advice doctors can offer to new patients following this life-altering news.
Exploring the often-complicated path to diagnosis
Season 2, episode 2 – The journey ahead
Today, doctors, people living with pulmonary fibrosis, and caregivers discuss how the journey towards diagnosing pulmonary fibrosis is different for everyone. Hear about their challenges reaching a diagnosis, the kinds of diagnostic tests undertaken, and advice on how to advocate for yourself and take an active role in your appointments.
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Season 2, special episode – Shedding light on pulmonary fibrosis
In this special edition, our panel of doctors, patients, and caregivers discuss what pulmonary fibrosis is and the different diseases it can be caused by. The conversation aims to explore the signs and symptoms of pulmonary fibrosis that people should be aware of, and the actions people with the condition can take to empower themselves.
Exploring the early signs and symptoms of Pulmonary Fibrosis
Season 2, episode 1 - Recognising the signs
To start the second season, we are joined by a group of specialised doctors, carers and people living with pulmonary fibrosis conditions, discuss the signs and symptoms they first noticed. Hear about the unique journeys to reach a diagnosis, how carers can help along the way, and why it’s so important to see a specialist lung doctor, even if symptoms appear ‘normal’.
Taking advantage of every day
Season 1, episode 6 – Pushing the boundaries
For the final episode of the season, we are joined by Kristin, a professional swimmer and keen scuba diver who has been diagnosed with Sjögren’s syndrome and progressive fibrosing interstitial lung disease, a rare condition. Find out how she safely adjusted her activities so she could continue pursuing the sports and pastimes she loves.
The importance of communication
Season 1, episode 5 – Creating a dream team
We are joined by John, who was diagnosed with idiopathic pulmonary fibrosis (IPF) after 10 years of symptoms. Thanks to a strong support network and staying active, John has adopted a positive outlook on life. This outlook allows him to see his diagnosis as the beginning of a new journey. Hear John's perspective on his journey with pulmonary fibrosis.
Helping others on a similar journey
Season 1, episode 4 – Support and empowerment
In this episode we met Andrew, who was diagnosed with scleroderma-related interstitial lung disease. He became an advocate for patients like him by sharing his support through the written word. Find out how he empowers others in the scleroderma community.
Adopting the right attitude
Season 1, episode 3 – Stronger together
We are joined by Cheryl, who was diagnosed with sarcoidosis-associated interstitial lung disease. Through the support of family and friends, Cheryl found strength and determination to ensure her disease would not control her. Listen to Cheryl speak about how her support system has changed her life.
How life-changing diagnoses can change perspectives
Season 1, episode 2 – An optimistic approach
We are joined by Jim, who spent over three years seeking a correct diagnosis of a rare lung disease called rheumatoid arthritis-associated interstitial lung disease (RA-ILD). Listen to Jim discuss his father’s journey with a similar condition and how Jim’s diagnosis changed his perspective on life.
Being a physician and a caregiver
Season 1, episode 1 – Creating a positive journey
In the first episode we are joined by Dr Craig Conoscenti, medical expert in interstitial lung disease (ILD) on the clinical development and medical affairs team at Boehringer Ingelheim. Listen to him discuss his experiences as both physician and caregiver to his own father, and the importance of creating a positive patient journey.
How to physically and mentally protect yourself during the pandemic
Season 1, special episode - The effects of COVID-19 on the pulmonary fibrosis community
In a special episode on COVID-19 and the effect on the pulmonary fibrosis community, Bill Vick, Founder of PF Warriors, and pulmonologist Dr. Leticia Kawano-Dourado share their experiences of the pandemic and discuss how those living with pulmonary fibrosis can best protect themselves during these uncertain times.