Living with Generalized Pustular Psoriasis (GPP)

Beyond the skin

GPP CAN AFFECT YOU EMOTIONALLY AND SOCIALLY

You may change how you socialize and interact with loved ones, or have feelings of anxiety and depression.

It’s normal for GPP to impact your relationships. Although living with GPP is not easy, it’s important to remember that there are ways to help manage your disease.

You are not alone. Staying connected to friends and family can really help. Online communities and patient organizations may also help you feel connected to others with GPP.

WOULD YOU LIKE TO SHARE YOUR STORY?

How you manage GPP may be helpful to others.

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TAKING AN ACTIVE ROLE IN YOUR CARE

Living with GPP isn’t easy, but there are some things you can try to help manage life with GPP. From finding a doctor who knows GPP to tracking symptoms and seeking treatment, taking an active role might help you feel more in control of your condition.

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TALKING ABOUT GPP

HOW DO I EXPLAIN GPP TO THE PEOPLE AROUND ME?

You can help others by explaining that GPP is a rare disease, so it makes sense that most people have never heard of it. Being open about what you’re going through can help your friends and family understand—and it may help you feel better to share your experience.
Here are 3 easy ways to explain GPP to the people around you:

IT’S AN IMMUNE DISEASE

IT’S NOT CONTAGIOUS

FLARES ARE UNPREDICTABLE

You may have to tell a coworker that you have to stay home when you have symptoms, even if the parts of your skin that are uncovered look OK. You may have to tell friends that you need to cancel plans without notice when flares come on suddenly. And it may help to share how you feel about physical intimacy with your partner.

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GIVING SUPPORT

HOW CAN I SUPPORT A FRIEND OR LOVED ONE WITH GPP?

How to support friend or loved one with GPP

There are many things you can do to support someone living with GPP. Reaching out often to ask how you can help is a good place to start.

CHECK IN WITH THEM TO HELP WITH FEELINGS OF ISOLATION
REASSURE THEM THAT IT’S OK IF THEY NEED TO CANCEL OR RESCHEDULE PLANS AT THE LAST MINUTE
ENCOURAGE THEM TO SEEK TREATMENT AT THE FIRST SIGN OF A FLARE
OFFER TO PICK UP MEDICINE, GIVE THEM A RIDE TO THE DOCTOR, OR OTHER THINGS THEY MIGHT NEED
MOST IMPORTANT OF ALL, LET THEM KNOW THAT YOU ARE THERE FOR THEM AND THEY ARE NOT ALONE