Living with idiopathic pulmonary fibrosis

Idiopathic pulmonary fibrosis (IPF) is a rare type of lung disease, where the exact cause of lung scarring remains unknown. If you have IPF, understanding common symptoms will help you manage your condition.1

Life with pulmonary fibrosis

This website will support you to learn more about your condition and connect you with resources to help you and your loved ones

COVID-19 and pulmonary fibrosis

If you have questions on how to stay healthy during the COVID-19 pandemic, you're not alone. We've compiled a list of FAQs with helpful information from leading health organisations

COVID-19 and pulmonary fibrosis

Who does pulmonary fibrosis affect?

There are many conditions associated with pulmonary fibrosis and you can use the resources on this website to understand more about your condition and how to manage and monitor your symptoms to help you live life to the fullest

Conditions with pulmonary fibrosis

Your emotional wellbeing is just as important

Living with pulmonary fibrosis can take an emotional toll as well as a physical one but remember that there are many things you can do to maintain a positive outlook

Older couple smiling
Woman reading a book and laying down

Carers need support too

Providing good care means taking care of your own mental and physical wellbeing first

Everyone's story is different

Jean shares how mindfulness helps her deal with her diagnosis and maintain a positive outlook

Lady looking at her left

Express how you're feeling

Keeping a personal diary for even just 10 minutes each day can help put some structure to anxious feelings and help you see things from a different perspective

Help us find the content that is right for you

Some days may be tougher than others. Regardless of how you're feeling we can point you in the direction of help. By telling us how you feel we can tailor our information and resources to your specific needs

Taking care of yourself

Even small lifestyle changes through nutrition, exercise, sleep and relaxation can improve your overall sense of wellbeing

Caring for someone

Caring for someone with pulmonary fibrosis can be challenging but with the right support and self-care it can also be highly rewarding

Practical advice

You don't have to stop living your life, with some adjustments you can set and achieve goals, travel and participate in fulfilling activities while living with pulmonary fibrosis

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Doctor speaking with patient and smiling

What is pulmonary fibrosis?

Pulmonary fibrosis means scarring in the lungs. Learn more about what pulmonary fibrosis is about how it affects the body
 
Smiling man standing in a garden

Taking care of yourself

Through different strategies, you can help to manage your mental and physical wellbeing with pulmonary fibrosis
 
Two women in the kitchen area

Practical advice

You may need to make some adjustments, but you’ll still be able to set and achieve goals, travel and participate in fulfilling activities
 

  1. Meltzer E, Noble P. Idiopathic pulmonary fibrosis. Orphanet J Rare Dis. 2008;3(1).

“As far as I'm concerned, life doesn't end with this...We still live a good life. We dine out, we travel to hotels, we enjoy life, and we socialise generally. I'd say don't give up, don't give up”