Susan's story
Sadly, Susan passed away in December 2018. She dedicated her life to teaching; educating hundreds of students and raising awareness of scleroderma. Her motto was to live and enjoy life, and this story remains a true testament to her legacy.
"I've embraced all the different things that you can get to help you."
– Susan
More stories
Anna's story
Anna talks about how she has adapted her life to continue to be able to do the things she loves, despite her symptoms.
Teresa's story
Despite her diagnosis, Teresa continues to travel and share new experiences with the people she cares about.
Monica's story
Scleroderma may mean you can no longer do some of the things you enjoy. Monica describes how she's learnt to love new things.
Doris' story
No one expects to develop scleroderma. Doris focuses on the importance of concentrating on the present, instead of the unknown.
Jessica's story
Scleroderma did not stop Jessica from achieving her goals. She pursued her dreams regardless of the diagnosis.
Alex's story
Symptoms of scleroderma can feel frustrating and unfair. Alex talks about how she overcame this and now looks for joy in everyday life.
Mandy's story
Staying positive can be difficult, but Mandy uses craft and creativity to continue to stay optimistic.
Mike's story
It’s easy to be fearful in the face of disease, but Mike and his wife, Alison, are an inspiring example of how you can lean on each other.
Maria's story
A positive mindset can help you overcome some obstacles of scleroderma. Maria talks about the importance of changing your outlook.
Lorraine's story
Symptoms effect everyone differently. Lorraine is able to live an active lifestyle and has continued teaching exercise classes, despite her diagnosis.
Grazia's story
Scleroderma can feel like the most important issue in your life. Here, Grazia explains how she overcame her fear to concentrate on her family.
Rute's story
Rute's story
Having a safe space can help with the stress of managing scleroderma. Rute discusses her love for the beach and the calm that it brings.
Joep's story
Joep looks for solutions in life. Using 3D printing, he creates tools that lessen the impact of scleroderma on his everyday life.
Danièle’s story
Danièle has lived with scleroderma for 22 years. She continues to find happiness in simple everyday pleasures and the company of friends.
Michael's story
Michael relocated with his wife and dogs following his diagnosis. He explains how living in the moment has helped him to find happiness.
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