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LIVING WITH GENERALIZED PUSTULAR PSORIASIS (GPP)

BEYOND THE SKIN

GPP CAN AFFECT YOU EMOTIONALLY AND SOCIALLY

GPP is not just about your skin.
You will likely feel the impact of GPP in your life all the time, even between flares. This may interfere with the way you socialise and interact with loved ones, or cause feelings of anxiety and depression. GPP may also have an effect on your personal relationships. 

Although living with GPP is not easy, it’s important to remember that there are ways to help manage your disease.
You are not alone. Staying connected to a support network of friends and family can help. Online communities and patient organisations may also help you feel connected to others who may be experiencing something similar.  

When GPP is managed well and you have support, it shouldn’t stop you from living your life.

PERSONAL EXPERIENCES WITH GPP

Get insights into real stories of people living with GPP, from their journey to diagnosis to taking an active role in their search for treatment.

WATCH
Iris Sat In A Room

IRIS'S STORY

Hear from Iris, who talks about personal challenges with diagnosis, flares, and treatment.
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WATCH
Carlie Sat In A Room

CARLIE'S STORY

Meet Carlie and learn about her journey—from diagnosis to how GPP flares affect every aspect of her life.
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WATCH
Christine Sat In A Room

CHRISTINE'S STORY

Learn about Christine's experience getting diagnosed with GPP.
WATCH

MANAGING YOUR GPP

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FIND A DERMATOLOGIST EXPERIENCED WITH GPP WHO CAN HELP YOU MANAGE YOUR CONDITION.

Some dermatologists are experts in GPP and other rare skin diseases. These dermatologists can diagnose GPP and help you manage your symptoms long-term. There are several ways to find a dermatologist who specialises in GPP:
 

  • Get a referral from your current dermatologist

  • Search a national professional organisation or local directory of dermatologists in your area and ask them if they specialise in GPP

  • Ask your health insurance company or national healthcare system

  • Reach out to your local patient organisations for a recommendation

THERE ARE THINGS YOU CAN DO TO TAKE CARE OF YOUR HEALTH

  • Limit your time in the sun and wear sunscreen. Too much exposure can trigger a flare

  • Limit how much alcohol you drink

  • Stay active and eat healthy foods

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TAKE CARE OF YOUR MENTAL HEALTH

  • Stress can be a trigger for a GPP flare. Establishing a relaxation routine may be helpful in reducing stress

  • One option is downloading a free mindfulness and meditation app

  • Another option is doing yoga or light exercises from home at your own pace and on your own time

  • If you need more personalised support, consider talking to a therapist individually or in a group setting

  • Spend time with loved ones. Being around people that you love and trust can boost your energy and lift 
    your spirits

  • Read an uplifting book, watch a comedy, or listen to relaxing music—anything that brings a sense of calm or 
    joy may help

WORK WITH YOUR DERMATOLOGIST ON TREATMENT GOALS

One way to feel empowered while living with GPP is to have a proactive discussion with your dermatologist about treatment options before your next flare.

  1. Set clear treatment goals and track your progress with your dermatologist
  2. Ask what simple changes you may make that may specifically help your GPP symptoms between flares
  3. If you have feelings of anxiety or depression, your dermatologist can direct you how to get help. Ask whether your dermatologist can recommend a psychologist or support group for people with skin conditions to help 
    you manage your emotions as you deal with GPP

TALKING ABOUT GPP

HOW DO I EXPLAIN GPP TO THE PEOPLE AROUND ME?

Since GPP is a rare disease, most people have never heard of it. Being open about what you’re going through will help your friends and family understand—and it may help you feel better to share your experience. 

Here are 3 easy ways to explain GPP to the people around you:

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IT’S AN IMMUNE DISEASE

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IT’S NOT CONTAGIOUS

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FLARES ARE UNPREDICTABLE

You may have to tell a coworker that you have to stay home when you have symptoms, even if the parts of your skin that are uncovered look OK. You may have to tell friends that you need to cancel plans without notice when flares come on suddenly. And it may help to share how you feel about physical intimacy with your partner.

GIVING SUPPORT

HOW CAN I SUPPORT A FRIEND OR LOVED ONE WITH GPP?

There are many things you can do to support someone living with GPP. Reaching out often to ask how you can help is a good place to start.

  • Check in with them to help them feel less alone
  • Tell them it’s OK if they need to cancel plans at the last minute
  • Encourage them to seek treatment at the first sign of a flare. GPP doesn’t go away by itself, and a flare can be life-threatening
  • Offer to pick up medicine, give them a ride to the doctor, or other things they might need
  • Help maintain a positive attitude and encourage them to partner with their doctor to find treatments that work
  • Affirm that you are always there for them and remind them that they are 
    not alone
Two Women Looking Into The Distance

LIVING WITH GPP

Living with GPP is not easy, but there are ways you can manage your condition. Watch the video to learn more.

GPP FACTS

It’s important to understand the many aspects of GPP. These include its causes, diagnosis, and symptoms, as well as recognising flares and their triggers. Download the brochure to learn more.