LIVING WITH
GENERALIZED 
PUSTULAR
PSORIASIS (GPP)

[Living with GPP]
[This video represents personal experiences of people living with GPP] [PC-CA-102539E]

[Brandon] Living with GPP,

I've experienced many situations where there's been things

that I've wanted to do, but I've not been able to do.

Sometimes I have physical limitations.

Other times I have mental depression because of it.

Sometimes I don't wanna go out.

I don't wanna be in public.

I don't want anybody to see me.

All I want to do is hide

And I do.

[Dale] I've covered up,

most times I am covered from head to toe.

I wear long sleeves, pants, hats

You know, to try to cover up.

[Christine] First of all

It changes the way that I feel about myself as a person

and as a woman and as a mother

When you have a condition

that some people see as disfiguring,

some people are afraid of because of misconceptions,

maybe others feel that you have something that's contagious

because they don't understand.

Or there've been times where people have actually stayed

away from touching me or hugging me

or even turn their face away.

[Brandon]: When I was 19, I wanted to join the Marines.

I scored very well on my ASFAB and passed the physical test,

but once the topic of my disease came up,

I was instantly disqualified.

It's hard to do any of those jobs when, if I have bad day,

it could lead to a bad week, maybe even a bad month

if it's not properly taken care of.

[Dale] Before I was fully diagnosed with GPP,

I was out with my son and we went swimming.

So I took my sweats off and got in the pool,

swam with him,

There was probably 8 to 10 children

in the pool at the time.

And all of a sudden just a couple jumped out here

and a couple jumped out here

and a mother come over and took her kids out.

And after when it was all done,

the only people in the pool are me and my son.

[Christine] When I was s first diagnosed and the GPP was so bad

all over my entire body, I could not pick up my daughter.

I could not physically pick her up

because it was so painful

Even if she touched me, I would move away

because sometimes just lightly brushing up

against different parts of my body hurt so badly.

So, that impacted, you know, my ability to just

interact on a daily basis.

The fact that if you do have GPP on different areas

of your body, such as private areas,

that makes it difficult

to even have a physical relationship with somebody.

And so these are things

that aren't really talked about a lot.

And I think it's important to just let people know

that this is something that really impacts

every aspect of your life and our relationships

with our family.

They're so important.

[Brandon] One thing I want everybody to know
 

is that there's always hope out there.

There are people that are trying to help,

and I think hope is one of the most important things

for anybody living with GPP to have.